My incontinence is not caused by a formal disease but rather it is caused by congenital birth defect.  Internal structures in my body were not fully formed and that is what causes my incontinence.  There are no true surgical options for my birth defects that can cure my incontinence.  There are ‘experimental’ surgical options that are not covered by insurance and are not guaranteed to work that I have opted not to do at this stage in my life.  For one thing, with insurance not covering them they are extremely expensive.  I would rather manage my incontinence with diapers and sometimes medication.  I have taken a few medications to try and just manage it but they are expensive and not that effective.  They would never be able to cure it anyways just reduce it.  Not much can honestly be done for structural defect incontinence that you are born with and never fully formed.  I don’t know the whole medical terminology for what didn’t form but it is a combination between my bladder and the nerves within the bladder that send signals to the brain indicating that you have to urinate or defecate.

I accepted a long time ago that diapers were going to be a part of my life forever and I made the absolute best of it.  Now, I love diapers and can’t imagine my life without them.  They give me so much more then management for urinary and fecal incontinence; they give me comfort, security, and joy in general that I love.  Sometimes life gives you things that may seem like a curse at the time but honestly if you learn to embrace it and make the best out of it then it will usually turn out to be a positive thing in your life rather than a negative.  Life is too short to be filled with negative things, fill it with positives!

Supposively, birth defect incontinence is not as common as other forms of incontinence but it is fairly common in the overall statistics.  That is what I was told at least.  Honestly, if there was an operation that was discovered tomorrow that would fix my incontinence, I would not have it.  This is who I am and I have learned to cope and make the best of it.  It really doesn’t cause me that much trouble as many may think.  I mean the hardest thing to watch out for really is poopy diapers in really public and close quarter areas and the only thing there is I just don’t want others to have to “suffer” the smell if I do happen to mess my diapers.  But, even that can be managed with plastic pants which significantly reduces the smell.

P.S. Thanks to Calista for your question – hopefully this answered it!.

By | 2009-06-15T19:12:16+00:00 June 15th, 2009|Uncategorized|10 Comments

10 Comments

  1. Cogs June 15, 2009 at 9:15 pm - Reply

    am not from the US so i dont know about the whole insurance thing do they cover your diaper exspenses or because you was born with it they won’t cover you? like you cant insure a car after you had the crash sort of thing lol

  2. Diam Diamsen June 16, 2009 at 10:43 am - Reply

    It is always nice to hear when something bad turns out to be better and sometimes have an advantage and even be good.
    I think that people adapts whatever comes in there way, like incontinence. Do you think you would have liked diapers if you didn’t were incontinent?

  3. David June 16, 2009 at 12:58 pm - Reply

    I too am incontintnt and have been since 1978. I was hit by a car, which caused a skull fracture. It started slowly but progressed to the point that I had to start wearing protection. I now wear cloth diapers and plastic pants all of the time. It took a long time getting used to it but now I don’t feel dressed not having a diaper on.

  4. Calista June 19, 2009 at 8:54 am - Reply

    Thank you for answering.
    I asked you this, because I have this syndrome (I will not go into details) which cannot be cured. I learned to live with it and I started to love this part of my life. Now outsiders do not understand my attitude when I say that even if there was a therapy or medicine to heal me, I wouldn’t take it.

  5. Jks16 June 21, 2009 at 9:32 pm - Reply

    That is a great! I love reading stories like this!!
    I can’t imagine ever sleeping without a diaper. It makes me feel so happy! I don’t even care about the bed-wetting anymore : )
    But If I could take that magic pill which would ‘fix’ me, I would NEVER do it. I am too happy the way I am : ) and I am glad you are so happy the way you are!

    More people need to learn to be happy with themselves!

  6. Michael R. July 1, 2009 at 1:19 am - Reply

    Follow up question: Was it apparent early on that this was a birth defect, or did you have to endure years of doctor visits, training programs, etc?

  7. David September 13, 2009 at 11:01 am - Reply

    What do you do when you go to the beace?

  8. David September 13, 2009 at 11:02 am - Reply

    What do you do when you go to the beach?

  9. Kevin October 30, 2010 at 2:27 am - Reply

    I say right on for you! You like yourself for who you are, and I truely respect that in a person.

  10. Troy June 11, 2011 at 10:40 am - Reply

    You mentioned plastic pants for helping with “poopy” diaper smell, does anyone here have recommendations on types of plastic pants? I have been looking for quality ones, havent decdided I want something plain or something a little more fun to help with the situation or both.

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